Behind the scenes ~ Ashley has followed our journey on Instagram for quite a while now and we got chatting at the end of 2017 as we share the same passion for raising awareness. He was the first person I thought of to interview for this website as I know how much it...
When my twins were born prematurely I had no idea that Harry would have a rare cranio-facial condition called Goldenhar syndrome. I didn’t cope very well with the news that my son had a facial disfigurement in the early days, particularly as we weren’t sure of the...
I never really noticed people staring at each other before I had a baby with half a face (yes, I’m blunt). The reaction we got in the early days almost made me a recluse. I was hyper sensitive to every glance and whisper. They may not have even been aimed at us but I...
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