Charlene is not qualified to give medical opinions or medical advice but has blogged extensively about her experience as a mother of a child with facial disfigurement. You can find her blogs at www.ouralteredlife.com which cover sensitive topics with honesty and humour.
You may also find some of the information in the blog section of this website helpful.
Other websites and groups you could head to for advice include –
The Katie Piper Foundation
The Katie Piper Foundation helps individuals with burns and scars.
Changing Faces support anyone with disfigurements of the face, hands and body.
Helpline: 0300 0120 275 (lines open Monday – Friday 10am – 4pm)
Skin Camouflage: 0300 0120 276 (line open Monday – Friday 10am – 4pm)
Let’s Face It
Let’s Face It are a support network for anyone with facial disfigurement, as well as their families.
Support for anyone undergoing the treatment of Orofacial Cancers, trauma as well as other facial disfigurements, plus support for their families.
Contact a Family
Contact a Family offer support for all childhood conditions, are also able to put families in touch. Featuring a directory of conditions and rare disorders online.
Helpline: 0808 808 3555 (lines open Monday – Friday 9.30am – 5pm)
CLAPA – Cleft Lip and Palate Association
Information and support on cleft lip and palate treatment.
British Association of Skin Camouflage
Helping patients to increase confidence by the skilful application of skin camouflage.
Support to those affected by Craniosynostosis and associated conditions. Providing factual information and links to appropriate medical establishments experienced in treating these conditions. We also provide a friendly and confidential telephone helpline to all those affected.
ABOUTFACE is a Patients’ and Carers’ support group. It has merged with a National Charity called Facial Surgery Research Foundation. It aims at helping present and future patients and carers to live through a difficult part of their lives as they are coping with the treatment of Orofacial Cancers, Trauma and other facial disfigurements.
The Healing Foundation
The Healing Foundation is a national fundraising charity championing the cause of people living with disfigurement and visible loss of function, by funding research into pioneering surgical and psychological healing techniques.
Facing the World
Facing the World is a unique UK charity that exists to provide life-changing craniofacial surgery to some of the world’s most disadvantaged and vulnerable children from developing countries affected by severe facial disfigurements.