My Story ~ An interview with Nicki Perrins

My Story ~ An interview with Nicki Perrins

Nicki and I are both parents of children with special needs and are part of a supportive online community with others who really 'get' each others different lives. Today though Nicki is sharing a different aspect of her life. I'll let her explain... My Story ~ An...

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More Than a Face. My Story ~ an interview with SerenaRae Stein

More Than a Face. My Story ~ an interview with SerenaRae Stein

Behind the scenes ~ I came across SerenaRae in a facebook group for parents of children with Goldenhar Syndrome and I was really struck by her positive and proactive attitude and views on parenting. I'm so glad she agreed to be interviewed for this website. I'll leave...

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More Than a Face. My Story ~ An interview with Ashley Carter

More Than a Face. My Story ~ An interview with Ashley Carter

Behind the scenes ~ Ashley has followed our journey on Instagram for quite a while now and we got chatting at the end of 2017 as we share the same passion for raising awareness. He was the first person I thought of to interview for this website as I know how much it...

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Helping children to understand facial disfigurement – 7 tips.

Helping children to understand facial disfigurement – 7 tips.

When my twins were born prematurely I had no idea that Harry would have a rare cranio-facial condition called Goldenhar syndrome. I didn’t cope very well with the news that my son had a facial disfigurement in the early days, particularly as we weren’t sure of the...

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Are people staring? 7 ways to deal with it.

Are people staring? 7 ways to deal with it.

I never really noticed people staring at each other before I had a baby with half a face (yes, I’m blunt). The reaction we got in the early days almost made me a recluse. I was hyper sensitive to every glance and whisper. They may not have even been aimed at us but I...

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