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3 ways that facial disfigurement helps my son

3 ways that facial disfigurement helps my son

You may or may not know that my son Harry was born with a facial disfigurement called Goldenhar Syndrome in 2005. For him, this meant that he was born with no eye, eye socket, ear, nostril and a short, underdeveloped jaw all on his left-hand side. Life hasn’t been...

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Facial difference; Causes and Impact

Facial difference; Causes and Impact

In the midst of a global pandemic, awareness of anything other than our own mental wellbeing and the health of those we know, and love has understandably not been the same priority that it was pre-covid. However, today I wanted to just remind people about the causes...

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Facial disfigurement education; Hope Vs Reality

Facial disfigurement education; Hope Vs Reality

Facial disfigurement is a topic you may never have discussed when the opportunity arose. Unlike other conditions, facial disfigurement can make people feel quite uncomfortable at times. Maybe its because we are intrinsically curious about differences and the urge to...

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Helping children to understand facial disfigurement – 7 tips.

Helping children to understand facial disfigurement – 7 tips.

When my twins were born prematurely I had no idea that Harry would have a rare cranio-facial condition called Goldenhar syndrome. I didn’t cope very well with the news that my son had a facial disfigurement in the early days, particularly as we weren’t sure of the...

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Are people staring? 7 ways to deal with it.

Are people staring? 7 ways to deal with it.

I never really noticed people staring at each other before I had a baby with half a face (yes, I’m blunt). The reaction we got in the early days almost made me a recluse. I was hyper sensitive to every glance and whisper. They may not have even been aimed at us but I...

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